The medical side

Anyone who knows me well knows I am not a medical person. While I don't faint at the site of blood, I have fainted (only once) seeing my child in pain. I came close with Willow in her surgical recovery. She was waking up and vomiting when the nurses told me her bed was broke and they'd have to move her. The thought of her being moved after having 4 major bones cut made me light-headed.
This is a new road I am walking. There is so much I don't know: such as how we will lift her with this big brace? How will we clean her for the next 4 weeks? What will she need when the lag braces come off? I am just feeling my way through this. I don't think she knows this. She trusts me to do the best thing. I know this because she will say "mommy carry; no avery carry or mommy push; no boys push, they no gentle."
   I had thought shed be coming home with 1 leg splint and she would have some mobility but with the double leg brace she is more dependant on me. Whereas she had some independence with toileting before she is now in diapers. I think we could manage the toilet with a few adjustments but she is fearful of the toilet causing pain so we will use diapers a little while longer.
  I am very thankful that She has not been in pain for the most part. She came home with meds but no plan for reducing so I am trying to figure out (with limited English) what she needs to be comfortable but not overusing any med. After talking with other OI moms I ditched the valium and began cutting back on the hydrocodone. Her only complaint is the bottom of her left foot. This seems preposterous considering she had 4 major bones cut and spliced; however a doctor who stated she has learned much from kids with OI stated she has observed that they have learned to ignore bone pain and are more sensitive to skin pain. Maybe the brains way of coping.
  In other news, she prayed for the 1st time tonight (I think I heard God smile) and she gave me my second real " I love you" not the love ya phrase we usually hear her repeat. This was coupled with a long hug and her telling me "you're nice."  I put that treasure in my memory bank for later.