Bless the Lord o my soul and forget not all his benefits. Psalm 103:2
Willow slept better last night. Her fever is gone this morning but she is nautious from meds and not eating much. With all her itching last night she pulled out epidural and disconnected IV. The epi. was due to come out anyway so not a big deal. With the epidural gone the catheter came out too. She has had more anxiety today and doesn't want anyone near her legs. I love her day nurses and the pain management team here. They go very slow with her.
She has gone shai bien (pee) 2x . She has looked at her legs, touched them and moved them around for comfort by lifting with hands and has even let me help a small amount. She has not yet told me what she thinks of the outcome; I wish I could read her mind. She wanted to know what the bandages were and of course when we we're going home. I mentioned that we would get her in a
chair and she became very anxious. The doctors think she's doing very well and anyone who has seen her Xrays from before are amazed. I am so thankful that we were led to this surgeon and the amazing group of OI parents who have shared information and prayed for us. It really is an incredible community of people.
Update: PT came in and willow was ok with me transferring her to couch while bed was changed. We have managed a few diaper changes with me lifting her bottom. Her pain seems to be managed except for an afternoon headache. She still needs to eat but I'm sure her appetite will return soon. Thanks for all the prayers.
To God be the glory, great things he has done.
No comments:
Post a Comment